Protest and March
Wednesday 12th April Kildare Street, Dublin at 1pm
To support access to Orkambi and Kalydeco Cystic Fibrosis drug therapies
Assemble 1pm sharp outside the Dail
Wear something purple and bring a whistle
In support of our member’s wishes and in partnership with CF advocates, Cystic Fibrosis Ireland is urging all our members and supporters to take part in a protest and march commencing outside the Dail in Kildare Street, Dublin on Wednesday the 12 April 2017 at 1pm sharp.
It has now been 10 months since the assessments of the CF ground-breaking Orkambi and Kalydeco have concluded. There is heightened anxiety within the CF community of continued delays in approving these drug therapies, despite some recent positive statements.
CFI calls on both the HSE and Vertex to reach an agreement to provide these ground-breaking drugs without further delay.
The protest will also include a short march.
Note: Negotiations are likely to be concluded very shortly. If an agreement is reached before Wednesday 12th of April we will be happy to call off the protest.