‘Government to sign off on CF drug deal next month’ (Sunday Business Post)

‘Government to sign off on CF drug deal next month’ (Sunday Business Post)

Please see below an article from the Sunday Business Post which predicts the approval of Orkambi ‘next month’. This follows on from recent positive comments by the Minister for Health Simon Harris TD on both Orkambi and the extension of Kalydeco on RTE radio and his comments about the likelihood of a deal on CF pipeline drugs to be included in the forthcoming agreement with Vertex.

While CFI will remain cautious until final approval is given, it is clear that all the signs are indicating a yes decision in coming weeks, which will be fantastic news for CF patients in Ireland who are waiting for both Orkambi and the extension of Kalydeco. CFI wishes to acknowledge the continuing commitment of Minister Harris and the Taoiseach in respect of new and innovative therapies and to the party leaders and health spokespersons of opposition political parties who have highlighted this issue in the Dáil in recent months with very significant effect.

 

CFI in particular wishes to acknowledge the parents and people with CF who have spoken so courageously to the national media in support of these new therapies and the ongoing support of the Board of CFI led by Patricia Duffy Barber. While many have been involved and we thank you all, we would like to single out Jillian McNulty in particular for her work in this regard. Thanks also to the Whitmarsh family (Ronan and Linda) and to Hazel Robinson too and all on the coordination group. ‘Your voice and support has made all the difference’.