Candlelight Vigil in Support of Orkambi
A group of parents are organising a candlelight vigil in support of Orkambi. While this is not a CFI event we are happy to let our members know in case they wish to support.
Families and friends of Cystic Fibrosis sufferers in Ireland will be holding candle light vigils at various points throughout the country and in their homes between 7pm and 9pm on Fri 17th Feb in a bid to raise awareness of the battle their loved ones go through daily.
Check this event on Facebook for further details and to take part - https://www.facebook.com/events/1866532033630400/?ti=icl