Publications
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CF Advocates

The CF Advocates support people with Cystic Fibrosis and their families in whatever way they can. Whether you need advice on your rights and entitlements, are looking for practical information about living with CF, or just need a chat, they are there to help.

 

How Cystic Fibrosis Affects Daily Life

This information sheet is intended to empower and encourage parents with the confidence to care for a child diagnosed with Cystic Fibrosis.

It outlines the importance of normality in the home environment, contains handy tips for parents and provides you with an idea of the daily routine for a child with CF.

 

Guide for New Parents

This booklet is intended as a guide for parents whose child or children have been recently diagnosed with cystic fibrosis (CF). It contains information about CF and coming to terms with a new diagnosis. It also includes information on how CF affects the body and what treatments are available, and provides answers to some questions other parents have asked.

Entitlements for New Parents

This booklet outlines the most relevant State supports for new parents of a child diagnosed with Cystic Fibrosis, which you may be eligible to apply for depending on your means and circumstances.

It includes details on the Domiciliary Care Allowance, the Carer's Allowance and information on how your child will get access to the necessary CF medications.

Cystic Fibrosis Care

Cystic Fibrosis Care is an information sheet for new parents to help explain what care a child with Cystic Fibrosis will receive. It is one of a series of information sheets that forms part of the new parent pack.

The roles of the individual Cystic Fibrosis team members are outlined and an overview of Cystic Fibrosis care centres is provided, along with what you should expect to happen at clinic appointments and annual assessments.

Nutrition For Your Baby

Good nutrition plays an important role in your child's overall wellbeing. This information sheet will explain your child's special nutritional requirements and what is needed to ensure your baby grows well and gains weight.