This is the Annual Report of the Cystic Fibrosis Ireland (CFI) for 2016. The purpose of this summary is to provide an overview of the work of the CFI, including progress in meeting our current programme of work.
The purpose of this Easyguide is to provide a concise and accessible summary of how Cystic Fibrosis Ireland (CFI) has ‘made a difference’ to CF services and better outcomes for people with CF (PWCF) in Ireland in the years 2014 and 2015.
This report covers our work in relation to improving CF centres; access to new and innovative drugs; health research; the provision of supports and information; the continued need for good governance; networking and progress in developing member services are all highlighted.
We wish to fully acknowledge and thank the hard working board and dedicated staff of CFI; our officers and the Staff and Finance Committee; The Medical and Scientific Council of CFI; our branches; our charity ambassadors and to all who have supported our work.
This report seeks to not just reflect the work of Cystic Fibrosis Ireland (CFI) but to highlight our impact over 2012/13. Our work and impact would not be possible without the support of our Board, our fantastic branches, the key advice from our Medical and Scientific Council MSC) and the many people and companies who support our community and corporate fundraising.
CFI remains a lean but effective organisation. We are signed up to and conform with charity regulations and fundraising best practice. In recognition of our work, CFI was awarded the prestigious 'Oustanding Contribution to Healthcare Award' in 2013, the same year that we celebrated the 50th year of our Association.
Despite all the challenges, it has been another year of steady progress for the Cystic Fibrosis Association of Ireland (CFAI). Significant gains have been made in
improving CF services and the public profile of issues related to CF and the CFAI remains high.